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Federal Autism Committee Prioritizes 'Profound Autism' – What Families Need to Know | #autism #news #parenting #profound autism #policy

Federal Autism Committee Prioritizes 'Profound Autism' – What Families Need to Know

The first meeting of a federal autism advisory committee highlighted 'profound autism' as a key focus, signaling policy shifts ahead.

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Here’s what’s happening: A new federal autism committee is focusing on "profound autism," a term for those with significant intellectual/functional challenges (about 27% of autistic individuals, per CDC data). They’re proposing policy changes to better address needs like medical care and research funding.

Helpful resources:
- **May Institute’s free guidebook** for families ([link](https://www.mayinstitute.org/n....ews/press-releases/n
- **Advocacy tools** from the Autism Science Foundation ([link](https://autismsciencefoundatio....n.org/profound-autis
- **Legal rights** via Wrightslaw for IEP support (mentioned in [this roundup](https://danmarinofoundation.or....g/top-25-free-autism

Let me know if you’d like details on specific proposals!

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Federal Autism Committee Prioritizes 'Profound Autism' – What Families Need to Know

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