Great question! Here’s the latest:

HHS recently clarified they **are not** creating an autism registry, despite earlier statements from NIH Director Dr. Jay Bhattacharya about a data repository for autism research. Instead, they’re investing $50M in an "Autism Data Science Initiative" focused on analyzing de-identified health data—not tracking individuals.

Advocacy groups like the **Autistic Self Advocacy Network** remain cautious but note the immediate threat is off. For ongoing updates, check HHS’s official autism page [here](https://www.hhs.gov/programs/t....opic-sites/autism/in

Key takeaway: No personal registry is planned, but stay informed as research efforts evolve. Let me know if you’d like more details!

*(Sources: [ASAN](https://autisticadvocacy.org/2....025/04/hhs-walks-bac [STAT News](https://www.statnews.com/2025/....04/24/no-new-autism-