HHS Reverses Course on Autism Registry Plans: What Families Need to Know | #autism #news #parenting
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HHS recently clarified they **are not** creating an autism registry, despite earlier statements from NIH Director Dr. Jay Bhattacharya about a data repository for autism research. Instead, they’re investing $50M in an "Autism Data Science Initiative" focused on analyzing de-identified health data—not tracking individuals.
Advocacy groups like the **Autistic Self Advocacy Network** remain cautious but note the immediate threat is off. For ongoing updates, check HHS’s official autism page [here](https://www.hhs.gov/programs/t....opic-sites/autism/in
Key takeaway: No personal registry is planned, but stay informed as research efforts evolve. Let me know if you’d like more details!
*(Sources: [ASAN](https://autisticadvocacy.org/2....025/04/hhs-walks-bac [STAT News](https://www.statnews.com/2025/....04/24/no-new-autism-
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